ABOUT THE NF HOPE CONCERTS

A series of Concerts aimed at ending Neurofibromatosis

Jeff and Melody Leibow created the NF Hope Concerts in 2011 after their daughter, Emma, was diagnosed with Neurofibromatosis (or NF) at the age of nine months old. NF is a genetic disorder of the nervous system characterized by tumors that can grown on any nerve in the body at any time. Symptoms range in severity from benign to severe and include attention and learning issues, blindness, deafness, chronic pain, deformation, cancers and death. NF affects 1 in every 2,500 births making it more common than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington’s Disease and Tay Sachs combined.

The most challenging aspect for families living with NF is that there is currently no cure and no treatments, which means that the only thing we, as parents, can do is wait for something to happen and hope that it never does. For that reason, Jeff and Melody founded the NF Hope Concert in 2011 because neither of them wanted to just wait.

This concert is what they do for Emma and the 128,000 living with NF in the US alone, when in truth, there is very little they can do. The NF Hope Concerts, which started in Las Vegas, have now expanded into New York and Chicago, and 100% of the proceeds from all of them go to Neurofibromatosis Network, a nonprofit dedicated to helping individuals with NF.


Jeff Leibow


Jeff Leibow

Co-Founder NF Hope Concerts

Producer NF Hope Concerts

Stage actor known for his starring role
in the hit musical, JERSEY BOYS.

Melody Leibow


Melody Leibow

Co-Founder

Co-Chair, Las Vegas NF Hope Concerts

Starring daily as Emma's supermom.

Emma Leibow


Emma, The Inspiration

The Inspiration

Loves Dance, Aerial and Rock Climbing

Her bravery inspires her parents
and everyone around her

CONCERT SCHEDULE

This year, choose between Chicago and Las Vegas!
Remember to book your tickets early!

Chicago's 4th Annual NF Hope Concert

Chicago's 4th Annual NF Hope Concert

Date: Sunday, June 25, 2023 @ 3:00 PM


Las Vegas' 13th Annual NF Hope Concert

Las Vegas' 13th Annual NF Hope Concert

Sunday, October 22, 2023 @ 1:00 PM PDT


THANK YOU TO OUR PRESENTING SPONSORS

Our NF Hope Concert National Sponsor, Alexion Pharmaceuticals
Our NF Hope Concert National Sponsor, SpringWorks Therapeutics

 

CONTACT US

Keep up to date with the NF Hope Concert!

 Las Vegas, Chicago, New York
 Phone: (630) 510-1115
 Email: info@nfhope.org

       

 


FROM THE BLOG

Jeff Leibow, Co-Founder, Producer & Director of Development

October 15, 2023, 3:29 PM - Typically, people think the number thirteen is bad luck. But when we look back at what we've done in the last thirteen years. When we look at the people we've educated and the awareness we've brought to the the cause. When we look at the moer than $1.5 million we've raised and the programs we've been able to support. How can anything we've accomplished be unlucky?

Some may say that having a daughter with NF is unlucky. But I would ask them, how is the community we've been blessed with unlucky? How is the extended family we've gained unlucky? How is having a place to put the passion this amazing community has inspired unlucky?

A number is what you make of it. Next Sunday, October 22, 2023, we intend to continue making the most out of this journey we never intended to take. And we intend to continue helping NF Network and this community until there is there is no need for our efforts any longer.

Join us for Las Vegas' 13th Annual NF Hope Concert at Myron's at The Smith Center on Sunday, October 23, 2023 at 1:00 PM. If you are interested in becoming a sponsor, contributor or in-kind contributors to contact us at info@nfhope.org. Can't make it in person, join us virtually.